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KARADAĞ SAYGI, NAİME EVRİM

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KARADAĞ SAYGI

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NAİME EVRİM

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Author: KENİŞ COŞKUN, ÖZGE × Subject: Child Health and Diseases ×

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    Validity and Reliability of Quick Motor Function Test in Ambulatory Duchenne Muscular Dystrophy Patients
    (2022-12-06) KENİŞ COŞKUN, ÖZGE; KARADAĞ SAYGI, NAİME EVRİM; Imamoglu S., KENİŞ COŞKUN Ö., Deveci M., Ozturk G., Karadag-Saygi E.
    The quick motor function test (QMFT) is used to evaluate Pompe patients\" motor function. This study aims to evaluate the convergent validity and reliability of the cross-culturally adapted Turkish version of QMFT in patients with Duchenne muscular dystrophy (DMD). Twenty-eight patients diagnosed with DMD were included in the study. The QMFT was translated and adapted to Turkish. The functionality of the patients was assessed with the north star ambulatory assessment (NSAA) and the 6-minute walk test (6MWT); muscle strength was evaluated with a hand-held dynamometer. There were two separate practitioners on the first day of the QMFT study; it was applied a second time by the first practitioner 14 days later. The mean age of DMD patients was 9.03 +/- 3.39 (minimum 4-maximum 18. Twenty-seven patients concluded all the necessary assessments. Intrarater reliability of QMFT in patients with DMD was intraclass correlation coefficient (ICC) = 0.98, and interrater reliability ICC = 0.98 was excellent. QMFT correlated very well with 6MWT ( r (s) = 0.86; p < 0.001) and NSAA ( r (s) = 0.91; p < 0.001). Both the QMFT and NSAA show stronger correlations with proximal muscle groups (convergent validity) than with distal muscle groups (divergent validity). QMFT is a reliable and valid test for evaluating motor function in patients with DMD.
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    The effect of telerehabilitation on quality of life, anxiety, and depression in children with cystic fibrosis and caregivers: A single-blind randomized trial
    (2022-05-01) KENİŞ COŞKUN, ÖZGE; KARADAĞ SAYGI, NAİME EVRİM; KENİŞ COŞKUN Ö., Aksoy A. N., Kumas E. N., Yilmaz A., Guven E., Ayaz H. H., Sozer T., ERGENEKON A. P., Karadag-Saygi E.
    Background Postural and aerobic exercises are essential in rehabilitation in cystic fibrosis (CF). The aim of this study is to examine the effect of telerehabilitation on the quality of life, depression, and anxiety levels of children with CF and their caregivers\" mood and anxiety levels. Materials and Methods Patients between the ages of 6-13 with CF were randomized into two groups. Study group received an exercise program three times a week via Zoom for 12 weeks. Cystic Fibrosis Revised Questionnaire (CFQ-R), Anxiety and Depression Scale in Children-Revised (RCADS) were applied to the patients and State-Trait Anxiety Scale (STAI) and Beck Depression Inventory (BDI) were applied to the caregivers in the beginning and at the end of the program. Patients\" FEV1 levels and 6-min walk tests were also measured. Results Twenty-eight patient-caregiver dyads, 14 dyads in each group, completed the study. The initial mean RCADS-Major depressive disorder score of the patients in the exercise group was 6.21 +/- 3.11, and this value decreased to 3.92 +/- 3.79 at the end of the study and was significantly better (p < 0.02). A similar significant change was observed when the RCADS-generalized anxiety disorder score decreased from the initial mean level of 6.28 +/- 2.81 to 3.42 +/- 2.65 (p < 0.01). There were significant changes in improvement in the body image in telerehabilitation group. Similar significant changes were not observed in the control group. Caregivers\" anxiety and depression levels did not change significantly. Conclusion A short-term telerehabilitation program improved patients\" anxiety and depression levels, body image, and functional status. However, caregiver anxiety and depression levels did not change significantly.
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    Small touches to big walks-the impact of rehabilitation on Sjögren-Larsson syndrome: A case report
    (2022-07-16) YOLCU, GÜNAY; KENİŞ COŞKUN, ÖZGE; KARADAĞ SAYGI, NAİME EVRİM; YOLCU G., Huseynli L., KENİŞ COŞKUN Ö., Karadag-Saygi E.
    © 2022-IOS Press. All rights reserved.Sjögren-Larsson syndrome (SLS) is a rare neurocutaneous disorder characterized by the presence of congenital ichthyosis, spasticity, and mental retardation. As with other rare genetic diseases, treatment is mainly symptomatic. Due to the absence of definitive treatment, lifelong follow-up and support of patients are important to improve the quality of life. A 7-year-old female child who was diagnosed as having SLS was referred to the rehabilitation clinic. After 20 sessions of a rehabilitation program, she started walking independently with the additional contribution of ankle-foot orthoses (AFOs). The contribution of the short-term rehabilitation approach and especially the administration of AFOs to the independence level of the patient is emphasized herein.