Publication: Patient-reported outcomes in Takayasu's arteritis
| dc.contributor.author | ALİBAZ ÖNER, FATMA | |
| dc.contributor.authors | Alibaz-Oner, Fatma; Sreih, Antoine G.; Merkel, Peter A.; Direskeneli, Haner | |
| dc.date.accessioned | 2022-03-12T20:33:06Z | |
| dc.date.available | 2022-03-12T20:33:06Z | |
| dc.date.issued | 2017 | |
| dc.description.abstract | Patient-reported outcomes (PROs) are assessment tools coming directly from patients about their feelings, perceptions, health-related functions, and treatment effects without interpretation by health-care providers. There is a global interest for more patient-centered care'' and PROs in rheumatology. Assessment of disease impact through patient-reported outcome (PRO) measures is a key element for clinical care and clinical research in Takayasu's arteritis (TAK). Currently there are no disease-specific PRO measures to assess quality of life for patients with TAK. Impaired health-related quality of life (HRQoL), functional status, increased anxiety, and depression were shown in patients with TAK in a few studies with generic PRO instruments such as the Short Form-36. However, it is difficult to capture disease-specific effects on patients' daily life and quality of life with these generic tools. There are ongoing efforts of Outcome Measures in Rheumatology (OMERACT) Vasculitis Working Group to develop disease-specific outcome measures in TAK. | |
| dc.identifier.doi | 10.1016/j.lpm.2017.03.023 | |
| dc.identifier.eissn | 2213-0276 | |
| dc.identifier.issn | 0755-4982 | |
| dc.identifier.pubmed | 28756078 | |
| dc.identifier.uri | https://hdl.handle.net/11424/234462 | |
| dc.identifier.wos | WOS:000410653700007 | |
| dc.language.iso | eng | |
| dc.publisher | MASSON EDITEUR | |
| dc.relation.ispartof | PRESSE MEDICALE | |
| dc.rights | info:eu-repo/semantics/closedAccess | |
| dc.subject | QUALITY-OF-LIFE | |
| dc.subject | RHEUMATOID-ARTHRITIS | |
| dc.subject | VASCULITIS | |
| dc.subject | HEALTH | |
| dc.title | Patient-reported outcomes in Takayasu's arteritis | |
| dc.type | article | |
| dspace.entity.type | Publication | |
| local.avesis.id | cc1c54e6-ce4a-4e0a-9c96-1cd6b30d4c9d | |
| local.import.package | SS17 | |
| local.indexed.at | WOS | |
| local.indexed.at | SCOPUS | |
| local.indexed.at | PUBMED | |
| local.journal.numberofpages | 3 | |
| local.journal.quartile | Q3 | |
| oaire.citation.endPage | E227 | |
| oaire.citation.issue | 7-8 | |
| oaire.citation.startPage | E225 | |
| oaire.citation.title | PRESSE MEDICALE | |
| oaire.citation.volume | 46 | |
| relation.isAuthorOfPublication | e995a136-8c56-4192-bebe-fe522b567ef1 | |
| relation.isAuthorOfPublication.latestForDiscovery | e995a136-8c56-4192-bebe-fe522b567ef1 |