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Awareness of sudden unexpected death in epilepsy among parents of children with epilepsy in a tertiary center

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dc.contributor.authorTÜRKDOĞAN, DİLŞAD
dc.contributor.authorsAksoy, Dilsat; Karakaya, Sevde Berce; Turkdogan, Dilsad; Karaketir, Seyma Goercin; Save, Dilsad
dc.date.accessioned2022-03-12T22:41:03Z
dc.date.available2022-03-12T22:41:03Z
dc.date.issued2020
dc.description.abstractObjective: Sudden unexpected death in epilepsy (SUDEP) is the second leading neurological cause of potential years of lifelost after stroke. Despite growing numbers of studies on social aspects of epilepsy, there is a paucity of research on the awareness of SUDEP among the parents of children with epilepsy (CWE), especially in Turkey. In this study, we aimed to evaluate the knowledge of parents of the CWE regarding SUDEP in the tertiary setting. Material and methods: A total of 146 parents (108 female) aged 19 to 55 years (median age:34) of CWE were included at Marmara University, School of Medicine, Department of Pediatric Neurology outpatient clinic between May 2018 and September 2018. A total of 30 multiple-choice questions and a written survey were administered, which consisted of three sections. In the first section, the sociodemographics of parents and CWE were questioned. In the second section, the severity of epilepsy was evaluated. In the third section, the knowledge level and awareness of parents of CWE were assessed. Results: Of 146 parents, only 16.6% previously heard about SUDEP, while 45% of them heard from their relatives. The presence of prior knowledge of SUDEP was associated with the presence of prolonged postictal confusion and longer duration of epilepsy (p < 0.05). Ninety-seven (66%) parents desired to be informed about SUDEP, while 76 (54.7%) of them agreed that this information should be given at the time of diagnosis. The degree of anxiety in parents regarding death of epilepsy-related causes was significantly related with prolonged postictal confusion (p < 0.001) and using three or more antiepileptic drugs (p = 0.005). Conclusion: Our data suggest that knowledge about SUDEP among parents with CWE found inadequate in Turkey. There should be much effort to inform parents and caregivers in epilepsy clinics on SUDEP, which may help to reduce the associated risk factors. (C) 2020 Elsevier Inc. All rights reserved.
dc.identifier.doi10.1016/j.yebeh.2020.107125
dc.identifier.eissn1525-5069
dc.identifier.issn1525-5050
dc.identifier.pubmed32623029
dc.identifier.urihttps://hdl.handle.net/11424/236059
dc.identifier.wosWOS:000577327900005
dc.language.isoeng
dc.publisherACADEMIC PRESS INC ELSEVIER SCIENCE
dc.relation.ispartofEPILEPSY & BEHAVIOR
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectSudden death
dc.subjectEpilepsy
dc.subjectChild
dc.subjectParents
dc.subjectKnowledge
dc.subjectMORTALITY TASK-FORCE
dc.subjectRISK-FACTORS
dc.subjectINTERNATIONAL LEAGUE
dc.subjectPREMATURE MORTALITY
dc.subjectAMERICAN EPILEPSY
dc.subjectINCOME COUNTRIES
dc.subjectSUDEP
dc.subjectEXPERIENCES
dc.subjectPROVISION
dc.subjectCOMMUNITY
dc.titleAwareness of sudden unexpected death in epilepsy among parents of children with epilepsy in a tertiary center
dc.typearticle
dspace.entity.typePublication
local.avesis.id7138b868-5dfa-4947-be84-53e096d6dca6
local.import.packageSS17
local.indexed.atWOS
local.indexed.atSCOPUS
local.indexed.atPUBMED
local.journal.articlenumber107125
local.journal.numberofpages7
local.journal.quartileQ2
oaire.citation.titleEPILEPSY & BEHAVIOR
oaire.citation.volume111
relation.isAuthorOfPublication0a1599c4-48ff-4aa9-b689-3927c986a650
relation.isAuthorOfPublication.latestForDiscovery0a1599c4-48ff-4aa9-b689-3927c986a650

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