Person: KARADAĞ SAYGI, NAİME EVRİM
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KARADAĞ SAYGI
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NAİME EVRİM
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Publication Metadata only Validity and Reliability of Quick Motor Function Test in Ambulatory Duchenne Muscular Dystrophy Patients(2022-12-06) KENİŞ COŞKUN, ÖZGE; KARADAĞ SAYGI, NAİME EVRİM; Imamoglu S., KENİŞ COŞKUN Ö., Deveci M., Ozturk G., Karadag-Saygi E.The quick motor function test (QMFT) is used to evaluate Pompe patients\" motor function. This study aims to evaluate the convergent validity and reliability of the cross-culturally adapted Turkish version of QMFT in patients with Duchenne muscular dystrophy (DMD). Twenty-eight patients diagnosed with DMD were included in the study. The QMFT was translated and adapted to Turkish. The functionality of the patients was assessed with the north star ambulatory assessment (NSAA) and the 6-minute walk test (6MWT); muscle strength was evaluated with a hand-held dynamometer. There were two separate practitioners on the first day of the QMFT study; it was applied a second time by the first practitioner 14 days later. The mean age of DMD patients was 9.03 +/- 3.39 (minimum 4-maximum 18. Twenty-seven patients concluded all the necessary assessments. Intrarater reliability of QMFT in patients with DMD was intraclass correlation coefficient (ICC) = 0.98, and interrater reliability ICC = 0.98 was excellent. QMFT correlated very well with 6MWT ( r (s) = 0.86; p < 0.001) and NSAA ( r (s) = 0.91; p < 0.001). Both the QMFT and NSAA show stronger correlations with proximal muscle groups (convergent validity) than with distal muscle groups (divergent validity). QMFT is a reliable and valid test for evaluating motor function in patients with DMD.Publication Metadata only Small touches to big walks-the impact of rehabilitation on Sjögren-Larsson syndrome: A case report(2022-07-16) YOLCU, GÜNAY; KENİŞ COŞKUN, ÖZGE; KARADAĞ SAYGI, NAİME EVRİM; YOLCU G., Huseynli L., KENİŞ COŞKUN Ö., Karadag-Saygi E.© 2022-IOS Press. All rights reserved.Sjögren-Larsson syndrome (SLS) is a rare neurocutaneous disorder characterized by the presence of congenital ichthyosis, spasticity, and mental retardation. As with other rare genetic diseases, treatment is mainly symptomatic. Due to the absence of definitive treatment, lifelong follow-up and support of patients are important to improve the quality of life. A 7-year-old female child who was diagnosed as having SLS was referred to the rehabilitation clinic. After 20 sessions of a rehabilitation program, she started walking independently with the additional contribution of ankle-foot orthoses (AFOs). The contribution of the short-term rehabilitation approach and especially the administration of AFOs to the independence level of the patient is emphasized herein.Publication Metadata only Internet-based basic body awareness therapy in fibromyalgia syndrome: A report of three cases(2023-02-01) ERSÖZ HÜSEYİNSİNOĞLU, BURCU; YOLCU, GÜNAY; KARADAĞ SAYGI, NAİME EVRİM; Tahran O., ERSÖZ HÜSEYİNSİNOĞLU B., YOLCU G., Saygi E. K.Previous literature has shown that basic body awareness therapy (BBAT) may be an effective treatment for fibromyalgia syndrome (FMS). This study constitutes the first case study evaluating internet-based BBAT for FMS. The purpose of this case study was to describe the feasibility and preliminary outcomes of an internet-based BBAT training for a total of 8 weeks in three patients with FMS. The patients underwent a synchronous individual internet-based BBAT training. Outcomes were assessed using Fibromyalgia Impact Questionnaire Revised, Awareness-Body-Chart, Short-Form McGill Pain Questionnaire (SF-MPQ), and plasma fibrinogen level. These measures were administered at baseline and after the treatment. Patient satisfaction with the treatment was evaluated using a structured questionnaire. At the post-treatment evaluation, each patient showed improvements in all outcome measures. All patients had clinically significant changes in Fibromyalgia Impact Questionnaire Revised. The SF-MPQ total score in Patients 1 and 3 exceeded the minimal clinically important difference. All patients\" pain severity exceeded the minimal clinically important difference for Visual Analogue Scale (SF-MPQ). Besides, we found some benefits in body awareness and the level of dysautonomia. At the end of the treatment, patient satisfaction with the programme was very high. Based on this case study, the application of internet-based BBAT seems feasible and promising for clinical benefits.