Publication:
Pesg PNH diagnosis, follow-up and treatment guidelines

dc.contributor.authorsSahin, Fahri; Akay, Olga Meltem; Ayer, Mesut; Dal, Mehmet Sinan; Ertop, Sehmus; Ilhan, Osman; Karakus, Volkan; Ozcan, Mehmet Ali; Ozkocaman, Vildan; Ozsan, Hayri; Salim, Ozan; Tobu, Mahmut; Tombak, Anil; Tuglular, Tulin Firatli; Yilmaz, Mehmet; Unal, Ali; Yenerel, Mustafa Nuri; Saydam, Guray
dc.date.accessioned2022-03-10T15:25:22Z
dc.date.accessioned2026-01-10T20:24:25Z
dc.date.available2022-03-10T15:25:22Z
dc.date.issued2016
dc.description.abstractPNH Education and Study Group ( PESG) have been established in December 2013 as a non-profit, independent, medical organization www.pesg.org. Paroxysmal Nocturnal Hemoglobinuria ( PNH) is a multi-systemic disease that should be treated with a multidisciplinary approach. Patients may apply to the clinics other than the hematology due to variability and diversity of clinical findings which lower the rate of diagnosis due to low awareness about PNH. PNH might be overlooked and diagnosis might be delayed. Regarding these, PESG was established with the collaboration of Immunology, Cardiology, Thorax Diseases ( Pulmonology), Neurology, Gastroenterology, General Surgery and Urology specialists in addition to hematologists dealing with PNH. The PESG study group aims to increase the awareness about PNH, including training activities about PNH, strengthening the relations between clinics and planning of clinical studies as a goal. It is the first professional organization focusing on PNH, in Turkey. In this guideline, we want to facilitate the diagnosis attributes of physicians from all specializations that deal with PNH and its systemic complications. One can perceive this as a tailor made guideline of international guidelines but not a compilation.
dc.identifier.doidoiWOS:000388367600001
dc.identifier.issn2160-1992
dc.identifier.pubmed27570707
dc.identifier.urihttps://hdl.handle.net/11424/220220
dc.identifier.wosWOS:000388367600001
dc.language.isoeng
dc.publisherE-CENTURY PUBLISHING CORP
dc.relation.ispartofAMERICAN JOURNAL OF BLOOD RESEARCH
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectPNH
dc.subjectguideline
dc.subjectdiagnosis
dc.subjecttreatment
dc.subjectPAROXYSMAL-NOCTURNAL HEMOGLOBINURIA
dc.subjectCOMPLEMENT INHIBITOR ECULIZUMAB
dc.subjectSTEM-CELL TRANSPLANTATION
dc.subjectCLINICAL MANAGEMENT
dc.subjectNATURAL-HISTORY
dc.subjectTHROMBOEMBOLISM
dc.subjectPREVALENCE
dc.subjectTHROMBOSIS
dc.subjectPREGNANCY
dc.subjectDISEASE
dc.titlePesg PNH diagnosis, follow-up and treatment guidelines
dc.typereview
dspace.entity.typePublication
oaire.citation.endPage27
oaire.citation.issue2
oaire.citation.startPage19
oaire.citation.titleAMERICAN JOURNAL OF BLOOD RESEARCH
oaire.citation.volume6

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