Publication: The impact of the COVID-19 pandemic on patients with Behçet's syndrome within the framework of Maslow's hierarchy of needs: Implications for patient empowerment in national or global emergencies
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Date
2023-03-02
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Abstract
Objective
The aim of this online survey was to assess the impact of the COVID-19 pandemic on patients with Behçet’s syndrome
(BS) using Maslow’s hierarchy of needs.
Methods
Sixty-eight BS patients from the UK completed an online questionnaire that covered three components of Maslow’s
hierarchy of needs regarding Physiological needs (sleep, food, mobility), Safety needs (employment, health),
Social needs (relationships), personal precautions and main concerns regarding COVID-19.
Results
The patients received a letter from the NHS (66.2%) advising shielding. Health concerns were addressed using
Tele-medicine by telephone consultations and e-mails to access BS specialists during lockdown (44.1%; 27.9%).
In addition, patients also obtained information through official government and Behçet corporate health web pages
related to Behçet’s disease for self-empowerment. During lockdown, their weekly working hours were reduced
(26.65±13.86 vs. 20.79±17.94) (p=0.017) and the employment rate was decreased (32.6% vs. 26.7%) in comparison
to pre-lockdown. Moreover, the reduction in frequency of exercise per week (4.39±1.94 vs. 3.71±2.26) and healthy
food consumption (73.5 % vs. 47.1%) per week were also reported (p=0.007; p=0.001, respectively).
Furthermore, patients experienced sleeping less (54.4%) and feeling lonely (66.1%).
Conclusion
Using Maslow’s hierarchy of needs provided a framework for reviewing the quality of basic needs in patients’ life
during lockdown. These needs are required for healthy social lives and the deprivation should be considered while
considering healthcare planning. Since lockdown appeared to have a negative influence on patients’ lives and disease
management in the framework of patient-centred, the empowerment of patients gained importance at this point
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Keywords
Behçet’s syndrome, COVID-19, lockdown, Maslow’s hierarchy of needs, empowerment
Citation
Fortune F., Mather J., Şişman-Kitapci N., Gokani B., Senusi A., Mumcu G., "The impact of the COVID-19 pandemic on patients with Behçet's syndrome within the framework of Maslow's hierarchy of needs: implications for patient empowerment in national or global emergencies.", Clinical and experimental rheumatology, 2023