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Pros and cons of botulinum toxin injection therapy in cerebral palsy: A qualitative study exploring caregivers' perspective

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dc.contributor.authorAKGÜLLE, AHMET HAMDİ
dc.contributor.authorsKaradag-Saygi, Evrim; Kenis-Coskun, Ozge; Unalan, Pemra C.; Evkaya-Acar, Ayca; Giray, Esra; Akgulle, Ahmet Hamdi
dc.date.accessioned2022-03-12T22:57:53Z
dc.date.available2022-03-12T22:57:53Z
dc.description.abstractBackground To describe and understand the experiences and beliefs of caregivers of children with cerebral palsy following botulinum toxin injection. Methods A descriptive case study approach with focus group interviews was employed. A semi-structured questionnaire was conducted to collect data. Twenty-one caregivers of children (3-13 years old) with cerebral palsy were recruited with a maximum variation sampling strategy to gain insight through different perspectives. Qualitative analysis with verbatim transcripts was analysed using a thematic approach. Findings Four themes emerged from qualitative analyses: acceptance of diagnosis, perceptions about treatment, caregivers' experiences with the health environment, and feelings and thoughts after the treatment. Conclusions This study highlights caregivers' requests for information about the possible long-term effect of botulinum toxin, as well as information and support to provide the best rehabilitation programme immediately after injection.
dc.identifier.doi10.1111/cch.12915
dc.identifier.eissn1365-2214
dc.identifier.issn0305-1862
dc.identifier.pubmed34623695
dc.identifier.urihttps://hdl.handle.net/11424/237111
dc.identifier.wosWOS:000709270400001
dc.language.isoeng
dc.publisherWILEY
dc.relation.ispartofCHILD CARE HEALTH AND DEVELOPMENT
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectbotulinum toxin
dc.subjectcaregiver
dc.subjectexperience
dc.subjectparent
dc.subjectqualitative
dc.subjectCHILDREN
dc.subjectSPASTICITY
dc.subjectADOLESCENTS
dc.subjectPARENTS
dc.subjectMANAGEMENT
dc.subjectMOVEMENT
dc.titlePros and cons of botulinum toxin injection therapy in cerebral palsy: A qualitative study exploring caregivers' perspective
dc.typearticle
dspace.entity.typePublication
local.avesis.idd648ac70-b223-49cb-830d-0d910276b74d
local.import.packageSS17
local.indexed.atWOS
local.indexed.atSCOPUS
local.indexed.atPUBMED
local.journal.numberofpages9
oaire.citation.titleCHILD CARE HEALTH AND DEVELOPMENT
relation.isAuthorOfPublication296064ca-9048-4b7a-8d93-58dea7e237c9
relation.isAuthorOfPublication.latestForDiscovery296064ca-9048-4b7a-8d93-58dea7e237c9

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