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The Relationship Between Caregiver Burden and Resilience and Quality of Life in a Turkish Pediatric Rehabilitation Facility

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dc.contributor.authorKARADAĞ SAYGI, NAİME EVRİM
dc.contributor.authorsKenis-Coskun, Ozge; Atabay, Cem Etken; Sekeroglu, Aynur; Akdeniz, Esranur; Kasil, Batuhan; Bozkurt, Gizem; Karadag-Saygi, Evrim
dc.date.accessioned2022-03-12T22:40:39Z
dc.date.available2022-03-12T22:40:39Z
dc.date.issued2020
dc.description.abstractPurpose: To investigate the effect of caregiver burden, resilience, and quality of life of the parents of patients who are followed-up in a tertiary pediatric rehabilitation clinic. Design and methods: This is a correlational cross-sectional study. Parents of patients who attend to utilize pediatric rehabilitation outpatient clinics of a tertiary center on a regular basis were invited to participate. All participants filled in the Zarit Caregiver Burden (ZCB) scale, Family Resilience scale (FRS) and Nottingham Health Profile (NHP). Results: A total of 107 patient and caregiver dyads were included. Fifty-five (51%) patients had cerebral palsy, 10 (9%) had spina bifida and 42 (39%) had other neurodevelopmental disorders. Eighty-one (75%) of the caregivers were mothers. There was a significant difference in the caregiver burden between ambulatory children (Mean ZCB score 30.11 +/- 13.56) and non-ambulatory patients (Mean ZCB score 37.22 +/- 13.91) (p = .01). There were moderate negative correlations between caregiver burden and FRS commitment to life and FRS self-sufficiency subscales. Caregiver burden significantly positively correlated with all NHP domains. Conclusions: Caregiver burden is significantly higher in parents of non-ambulatory children when compared to ambulatory children in the pediatric rehabilitation setting. Caregiver burden and resilience correlated on moderate levels, but the factors influencing them are still unclear. Practice implications: Healthcare and social support should be given to all caregivers in pediatric rehabilitation setting, but more so to the caregivers of non-ambulatory patients. (C) 2019 Elsevier Inc. All rights reserved.
dc.identifier.doi10.1016/j.pedn.2019.10.014
dc.identifier.issn0882-5963
dc.identifier.pubmed31676209
dc.identifier.urihttps://hdl.handle.net/11424/235998
dc.identifier.wosWOS:000571855900035
dc.language.isoeng
dc.publisherELSEVIER SCIENCE INC
dc.relation.ispartofJOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectCaregiver burden
dc.subjectPediatric rehabilitation
dc.subjectResilience
dc.subjectQuality of life
dc.subjectCHILDREN
dc.subjectFAMILIES
dc.titleThe Relationship Between Caregiver Burden and Resilience and Quality of Life in a Turkish Pediatric Rehabilitation Facility
dc.typearticle
dspace.entity.typePublication
local.avesis.id6ea3ffaf-e0a1-4266-8cd2-164f5e4d3c42
local.import.packageSS17
local.indexed.atWOS
local.indexed.atSCOPUS
local.indexed.atPUBMED
local.journal.numberofpages6
local.journal.quartileQ2
oaire.citation.endPageE113
oaire.citation.startPageE108
oaire.citation.titleJOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
oaire.citation.volume52
relation.isAuthorOfPublication5ac4517a-f739-4f83-b6fc-a6f81630bca8
relation.isAuthorOfPublication.latestForDiscovery5ac4517a-f739-4f83-b6fc-a6f81630bca8

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